The Cancer Rundown…

Here are my shoes, feel free to take a walk:

Dx 5/11/05 @ 34yo with Stage IVB NSHD
5/12/05 – MUGA Scan
5/13/05 – PFT
5/16/05 – First PET for Staging
5/17/05 – Bone Marrow Biopsy
5/25/05 – Port placed
5/25/05 – ABVD Begins
6/25/05 – Married to Barb
8/12/05 – Itching hands return
10/14/05 – PET Scan: “Dramatic Improvement” Only mediastinal uptake left.
11/10/05 – ABVD ends
12/9/05 – PET Scan: mediastinal uptake, grown from previous PET taken halfway through ABVD.
1/19/06 – First Dr. Cooper Appointment
1/23/06 – One round of ICE, bladder freaked out
2/6/06 – Cisplatin/Gemzar begins
2/15/06 – Hair finally gone
3/7/06 – Cisplatin/Gemzar Ends
3/12/06 – PET=uptake
3/16/06 – Wisdom tooth removed
3/30/06 – 4/4/06 – Into hospital for ifos/navelbine/gemzar
4/4/06 – Released from hospital. End of ifos/navelbine/gemzar
4/11/06 – Stem Cell Collection
4/17/06 – PET=uptake
4/26/06 – British MOPP! begins
4/28/06 – Put Hartford house on market
5/12/06 – Put in offer for new house
5/19/06 – PET=uptake
5/24/06 – British MOPP! ends
5/26/06 – Itch returns
6/1/06 – See Dr. Detterbeck, chief of thoracic oncology
6/5/06 – Chest CT
6/9/06 – Closed on new house
6/14/06 – Thymectomy
6/15/06 – Chest tubes taken out
6/16/06 – Out of Hospital
6/19/06 – Official move in to new house
6/21/06 – Thymus biopsy results in – it was the Hodge
7/06/06 – BEAM begins
7/11/06 – BEAM ends
7/12/06 – Received Stem Cells
7/22/06 – Chest CT for bubbling sound in left lung
7/22/06 – Admitted to hospital for fever & pneumonia
7/25/06 – Released from hospital after CXR shows no pneumonia
7/28/05 – Weird spots in vision start
7/28/06 – MRI of brain: three small “abnormalities” in the occipital lobe of my brain, otherwise clear. Occiptal lobe appeared old for my age.
7/30/06 – Left sided kidney pain begins
7/31/06 – PET Scan to look for infection. Chest uptake finally gone, kidneys showing mild uptake.
7/31/06 – Admitted into hospital
8/2/06 – CT-guided kidney biopsy, as kidneys had stopped functioning, probably due to acute tubular necrosis caused by an earlier dramatic decrease in blood pressure.
8/4/06 – Begin urinating regularly again.
8/4/06 – EEG for vision spots
8/4/06 – Examined by opthamologist specializing in retina issues. Verdict: two or three small “cotton ball” areas in retina, possibly caused by being neutropenic after SCT.
8/5/06 – released from hospital
8/16/06 – Saw retina fellow who states cotton balls are smaller
8/17/06 – Strange chest pain begins
8/19/06 – Visit to ER for strange chest pain. Deemed normal and pain stops until later that night.
8/20/06 – Shoulder pain added in early morning.
8/21/06 – Nuc Med lung study & echocardiogram
8/21/06 – Admitted to hospital for chest/shoulder pain. Put on mucomyst to prepare kidneys for a chest CT w/ contrast
8/22/06 – Chest CT for Radiation simulation and tattooing.
8/??/06 – MRI of C-Spine and T-Spine. Slipped disc in T-spine, otherwise normal.
8/27/06 – Released from hospital with possible pneumonia diagnosis.
8/28/06 – Radiation Begins
9/7/06 – Began developing stabbing shoulder pain
9/11/06 – Into ER again for CXR, pneumonia found.
9/11/06 – Admitted into hospital
9/14/06 – MRI of left shoulder. Inconclusive.
9/15/06 – Released from hospital
9/20/06 – Retinologist appointment. Cotton balls still shrinking.
9/25/06 – Radiation Ends
10/2/06 – Begin seeing Dr. Finley, Psychologist
11/1/06 – Back to work full time
11/1/06 – Found someone to rent our Hartford house
11/21/06 – Begin seeing Dr. Schwartz, psychiatrist and ADD specialist
11/22/06 – the itch becomes The Itch
11/27/06 – PET=CLEAN!
11/28/06 – Adderall XR starts
11/30/06 – Follow-up MRI of Brain
12/01/06 – Dermatologist visit for The Itch. Biopsy of left arm.
12/01/06 – Begin Acyclovir, Eladil + Doxepin.
12/08/06 – Dermatologist follow-up
12/20/06 – Retinologist follow-up
12/21/06 – The Itch is finally quelled by the Doxepin.
12/25/06 – The previous week is filled with Christmas Miracle after Christmas Miracle.
12/31/06 – A first draft of my Grand Idea is finished.

Chemo drugs I’ve had:

  • ABVD: doxorubicin, bleomycin, vinblastine, dacarbazine
  • ICE: Ifosfamide, carboplatin, etoposide
  • No-name #1: Cisplatin, gemcitabine
  • No-name #2: Ifosfamide, gemcitabine, navelbine
  • British MOPP: Chlorambucil, vinblastine, Procarbazine, prednisone
  • BEAM: BCNU, etoposide, cytarabine, melphalan


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