Wow - August was my last post. August? Seriously? Wow.

There have been a lot of reasons for my silence the past few months. The first one being (say it with me gang), work has been crazy. The craziness is finally starting to call down just a little, so I’ll be able to pay a little more attention to you, my adoring public.

The other big reason is, I’ve lost some great friends recently. With each one, I’ve felt that I needed to write one of my novella-length posts in memorial to them both for me and for their families. But with each new loss, that meant I had another novella that I needed to write. I’ve felt more guilty for not paying proper tribute to them than for leaving all of you in the lurch.

With these enormous self-imposed tributes hanging over my head, it didn’t feel right to write about the more trivial things in my life until I paid them each the proper respect. And due to the work craziness, I didn’t have the time available to sit and type away.

Finally, my wife and a bunch of Hodgers made me see the light. Last weekend, we had our big Hodgeapalooza East meetup, where a bunch of us from the Hodge Board got together to eat, drink and be more than merry. It was an awesome weekend keyed off by the fact that two of our more prominent members from Scotland were planning on making the leap over the pond for vacation (no matter what Veronica says). Sensing a once-in-a-lifetime possibility, we had a great turnout of folks with their spouses and/or parents, patients, former patients and caregivers alike.

The most amazing thing is that in this large group of people (30? 40? My math’s been bad lately), there wasn’t a single person who made you think “Oh man, I can’t wait to get aWAY from this fool!” When’s the last time you’ve had that happen in a large gathering? Of course, there’s always the possibility that I was the fool to get away from, but I’m just self-centered enough to convince myself that that is more than likely not the case. Maybe.

Meeting all of these people in person for the first time after going through so much with all of them was… some word that I don’t know. Wherever “amazing” “extraordinary” and the like are on the scale of greatness, pick your own word that’s thirty or forty levels above those. That’s what it was. Being around all of my Hodge family made me realize just how much I’ve missed having them in my life, even when they’re primarily words on a screen. I also realized that not only am I being heard when I speak, but that I’m missed when I’m silent. The realization absolutely floored me. A few people told me how important my jester-like presence was and others told my wife in secret what a difference I was making for them by just yammering away. Okay, they used nicer words, but I have to keep myself grounded, you know.

Seeing that I was making any kind of difference to people out there in the cold cruel world also finally drove home one thought I had been keeping in the back of my brain: The friends I have lost would be SO pissed off to discover that they’re part of the reason I’m no longer out here making people giggle or shake their heads in disbelief at the latest dumb thing I did. I think this is proof positive that there’s no such things as ghosts, because I’m sure they’d all be haunting me by now.

Even though these people were very important to me, I’m going to finally break the barricade by not worrying about long tributes with the perfect thing to say. Sometimes the most perfect tribute is to say that someone has touched your life and will be missed and thought of every day.

Anne-Marie, Sarah, Shannon and Doug - you four are in my heart and mind forevermore. Anne-Marie and Sarah are two of the three people who got me fired up about how folks were treating them and made me decide to make Cancer is My Bitch a Movement. I got a shaky semi-start, but that’s another project crushed by work, another promise broken. I’ll be taking up the CiMB mantle again shortly though, and it’ll be bigger and better than ever. Shannon and Doug I only knew through their spouses, who posted on our Hodge board, but they were just as much family as every other Hodger out there and just as much pain when we lost them. Though I only got to see them through Jesse and Deb’s eyes respectively, it was obvious even secondhand just how strong and loved they both were.

I miss all four of you, though I can’t imagine it’s anything near as much as the people who were actually with you in person feel.

Okay, I’m back to posting now. Now will you guys PLEASE quick making all those spooky noises in the attic?

I’m definitely going to be posting more often now (lofty goal, since my last post was about 10 months ago) and I have Big Plans for CiMB, Moondoggie and my photography, but I’ll slowly reveal those later. I doubt I’ll reach that lofty “post-a-day” goal that I usually set for myself, and I’m tired of breaking promises. So that means, you’re left with “I’ll be posting more frequently,” so suck it up, people.

I just noticed that my last post was on JUNE 22nd and now I’m finally posting again on AUGUST 22nd. Spooky! Not to mention that my jersey number is 22 as well. Oooooo! And Oingo Boingo is playing too! That doesn’t have anything to do with the number 22 as such, but it’s a spooky sounding song.

So here I am, putting off writing another post because I have so much to catch everyone up on, which means that more stuff happens, which means I put off the post longer, which means more stuff happens, which means I start to get a little dizzy after awhile. So now, it’s time to break the cycle. There will be a lot that’s happened which might occur to me to mention down the road aways, or I might never get around to it and have this hidden little dark corner of my life that you don’t know about, filled with forgotten ideas and trips to the ice cream shop.

So, some of the biggest news is that I had chicken pox. Again.

(For my Hodge board friends, this is in reference to the pox I just had, not another, which would be the third time, if it happened).

Yes, I had the pox as a child, but the stem cell transplant sets your immunity back to zero, so you have to get re-immunized for everything. For once, it wasn’t a case of me slacking and putting it off or forgetting. You can’t get re-immunized until you’re one year post-transplant, and I had only recently hit the mark (July 12th, my first re-birthday). So now hopefully next week I’ll get my immunizations. I had to wait to be rid of the pox, then I had to spend a week or so forgetting to call and set up my appointment. D’OH! I would do it this week, but Barb’s volunteering at the Hole in the Wall Gang camp this week, and I want to make sure someone’s around to take me to the hospital if I need it.

Sure, nothing untoward typically happens with immunizations, but I think I’ve shown I’m not quite typical when it comes to the medical world.

Another thing making me feel young and happy with the world is that I bought my first laptop. I’ve had many a desktop computer, but have never really had a reason to get a laptop until now. My previous job with the state gave me a state-issued laptop since I was on the road, but that’s not quite the same as your very own flat-black-cased rectangle of awesomeness.

Of course, me being me, I couldn’t simply get a laptop with nothing special happening. I compared a bunch of stats, features and prices and went with a nifty Lenovo ThinkPad (formerly IBM). I was a little surprised as I watched all of the shipping information that everything was originating in China. Sure, I have a bunch of stuff made there, but usually it’s sent to a US warehouse so it looks like it’s coming from here. Then, about a week after my new baby arrives, I find out that the US Government sent back a shipment of Lenovo computers after discovering Lenovo was owned by the Chinese government. Great. Now the Chinese government is going to know my Minesweeper scores.

Let’s see, in other news, I’ve finally seen a neurologist, and he’s prescribed Neurontin for all of my ails. This is awesome, as it seems to cover all kinds of problems I’ve had, both pre- and post-cancer. I’m in my second (third?) week of it, and so far, so good. Of course, I haven’t done a lot of walking since I started taking the pills, so I don’t know how it’s taking care of the Lhermitte’s issue. Time will tell.

As for now, it’s back to work. There now, that wasn’t so hard, was it?

Hey Everybody

Still busy as always, but I had to get a couple of words out before getting swallowed back up again.

First, thanks to all of you for your care, concern and love over the past few days. If there’s one thing cancer does, it’s surround you with great people. I haven’t had a chance to respond to your comments and emails yet, but I will soon!

Second, speaking of emails, I’ve recently discovered my spamblocker has been going a little nutso on who it decides to block. So, if you sent me an email awhile back and I haven’t responded yet, you might be one of them it caught. Or I might just be a lazy, good-for-nothing slacker. Only time and some digging will tell, but I’ll get back to you soon!

Lastly, the biggest news. I had my PET scan this morning and… it’s clean! There’s a little bit of activity around my appendix, but since I’m not keeling over in agonizing pain, everything seems to be fine. Now we can all get come sleep this weekend :)

After you’ve gone… and left me cryin’,
After you’ve gone… there’s no denyin’,
You’ll feel blue, you’ll feel sad,
You’ll miss the dearest pal that you have ever had.
- Henry Creamer & Turner Layton

Well, today marks an anniversary of sorts. One year ago today, my thymus walked towards the light and left this mortal coil after being sucked through a tube and diced into little bitty bits. So long, sucker.

It seems a strange thing to commemorate, what with the regular birthdays and the stem cell birthday and the diagnosis anniversary and the first symptom anniversary and all, but for some reason, I found myself counting down the days until today. Maybe it was my subconscious way of getting myself to feel okay about sitting still and writing instead of working on some project or another.

I’ve always been at least a vaguely self-reflective person, and quite good at ferretting out the reasons behind why I am or do certain things. I seem to recall there’s something special about that quality and ADD. Either it helps your brain to do this, or you’re not supposed to be able to do this. Either way, it’s one of my more powerful and annoying traits. While I can see why I’m doing the things I’m doing, that doesn’t mean I can actually do anything about them, which makes it all the more frustrating.

Can you tell yet that this is going to be a long one?

I’ve had a lot of little bumps in the road as of late, and I’ve been getting the feeling that there’s something that floats around in the air with us Hodgers, as when I start to feel or think about certain things, someone always winds up posting about the same thing. In this case, we’re talking about those ol’ Post HL Blues that Paige brought up. I would’ve posted this over there, but as soon as I tried, the site went down.

Oh well, I’m used to muttering to myself. It’s comforting, and I always laugh at my jokes.

Back to the topic at hand - me. Anyhoo, I’ve been driving myself a little crazy for the past few months, both through my actions and my examinations of those actions. Like most things dealing with cancer, it’s worse at night.

For starters, I’ve finally come to a new realization, somewhere in the middle of reading that similar thread on the NHL Side that Kat posted a link to in Paige’s thread. I’m not totally sure it could be called a realization, since I knew it in my brain somewhere, but at some point tonight I suddenly new it in my gut.

The cancer claimed another victim. He was 32 years old, had his whole life ahead of him, and had no idea what hit him. Granted, it didn’t take him quickly - these things never do. But though he hung on for a year or so, his time of death can be placed right at the start of it all. On October 3, 2003, Brian Watts died.

If I were a drinker, I’d raise a glass to that old forgotten me. If I were a gangsta, I’d be sure and pour some of my 40 on the ground in his memory. But starting with that first infuriating itch, that Brian’s fate was sealed.

And now you all have to deal with me.

Sure, there are still ways that I’m the same. Times when people recognize the “old me.” It seems like other people see it a lot more than I do, though. Hell, there are lots of ways that I’m better that I was.

Brian Watts, Geek. A man barely alive. Gentlemen, we can rebuild him. We have the technology. We have the capability to build the world’s first bionic man. Brian Watts will be that man. Better than he was before. Better, stronger, faster.

Okay, so the “stronger” part hasn’t happened yet, unless they were talking about will or determination. But who wants that? I want that cool noise when I leap over cars. At the very least, I want to be able to walk two blocks without having to start limping from the L’hermitte’s. I want to be able to exert some physical energy, take a break, then get back to work, rather than just having to put my head down and grind because I know that if I stop to rest, I won’t be able to continue.

I want to look in the mirror in the morning and see me, not The Other.

Granted, being a new me isn’t necessarily a bad thing - our dearly departed Brian did have his flaws. Who doesn’t? But it’s not necessarily a good thing either. At best, I seem to have just traded in my old scuffed up luggage for a larger, heavier-duty set. Big Joe vs. the Volcano trunks.

Currently, my biggest suitcase contains “overworking.” Actually, a few of my larger ones carry that, as well as this carry-on and one of the fanny packs.

You see, I’ve been caught in a mental trap of sorts ever since the firing back in late February. One side of the trap goes like this: “You’ve recently accomplished An Amazing Thing. You beat cancer. Now is the time to appreciate life and all of its beauty. Go out and smell some roses!”

The other side of the trap sounds like “You’ve recently accomplished An Amazing Thing. There was obviously some Reason this happened, so you’d better hop to and get to work. You were put through the struggle and came out on the other side for a Reason, so you’d better not screw around smelling roses - you’ve got work to do! Go fulfill your DESTINY!”

Yet another side follows this line of reasoning: “You beat the Hodge - this time. This thing comes back and that first fight wasn’t all puppies and lollipops. It’s time to make hay while the sun shines. You’d better get to work and get those ducks in a row now, because you don’t know how much longer you actually have.”

I think that last side is what’s been bothering me the most lately. It’s bad enough knowing what Sarah and Anne-Marie are having to deal with and occasionally having the “that could be me” thought pass between my ears in the midst of all the usual static.

But I’ve found that it’s even worse when the thought isn’t cutting through the static. Because it’s there whether I hear it or not, screwing with my every action.

I’ve been doing a fair bit of home repair lately. I’ve embarked on projects that surprise some in their grandeur, but that I consider fully within my means and abilities. Yet, once I get started, they’ve all been spiraling out into madness of Lucy Ricardo proportions.

One late, late night, covered in grime and cobwebs and curses, the reason for this suddenly dawned on me. I was trying to make everything I did bulletproof. Why?

Because I might not be around to fix it if it breaks.

That’s right - my subconscious has been pushing me to work harder, faster and crazier, because it’s convinced I will die soon and I should make sure that things are taken care of. How messed up is that?

And what’s worse is, that’s only one facet to this new Brian’s screwy new life. Let’s go write on the chalkboard for a bit.

• A Subconscious certainty that It’s Gonna Get Me, and Probably Soon
• New job with ever-expanding responsibilities and needed job skills with ever-shortening amounts of time to learn and do it all (not the Death thing, but the Time Management Thing)
• A new puppy (well, new since February) who, while she’s a bundle of joy in her life, does have her moments, like any creature, be they man or beastie.
• The Baby Thing. I’ve had so many different chemicals pumped through me that I’m no longer a factor in the actual fertilization part of the baby process. That means that we can’t just go and get knocked up like most couples - we actually have to think about how we’ll make it happen, when to make it happen, and think about all of those “what ifs” and “whys” and “hows” and “should we’s”. Aside from the stress that all causes, there’s the added bonus of feeling like a failure. Not one of those male “I should be able to spread my seed far and wide” type failures, but a feeling of failing Barb, not being able to give her something she wants and truly deserves. Then again, what has she done that’s so bad to deserve a little Brian running around, right?
• Aside from that failure thing, there’s also the lingering thought in the back of my head that always upsets Barb’s when she sees it in my eyes, but I can’t help it. So skip to the next bullet point now, Barb. Please. That other thing is the suspicion that I’ve ruined Barb’s life. Not that she’d ever think or feel that way, but while I can see a lot of good things that have happened in her life from me being around, I also see a lot of bad. And when the nights grow dark, the bad things pile up.
• I know there’s a whole hell of a lot more going on in my mind right now, but I’m too tired to think of it. But I did ask Barb to skip down to the next bullet point, so that meant I had to write something, right?
• Oh, here’s another - Responsibility. Responsibility as a Survivor. Responsibility as a Husband. Responsibility to my fellow cancer folk. Responsibility as a furry little girl’s Dad. Responsibility as a Homeowner. Responsibility as CTO of a small company that I could accidentally destroy with a few misplaced pieces of code. Holy crap - it seems that at some point in the last year or two, I grew up. How much does that suck?

So all of that has been weighing on me as of late and kind of driving me into the ground. I tend to not be able to think of all the possible problems at once, for much the same reason I’ve never been able to cry about myself. I can dissolve into a puddle watching a home makeover show because I know it’ll be over in an hour and the crying can stop. Today, it was an episode of Overhaulin’ that got me. And if that’s not pathetic enough for you, I’m actually tearing up a little right now thinking about it. But if I cry about me, when does the crying stop? So I can’t cry about me, but I can (and do) cry about all of you in your battles. And about movies where the rookie learns a valuable life lesson from the veteran. Or when Barb looks at me That Way. Or when they call the wind Mariah.

Anyway, back to the driving into the ground bit. Some days are better than others, some are worse. Lately, we’ve been swinging to the “worse” side. Why?

The Itch is back.

Originally, I thought it was because I had missed a couple of days of my Doxepin. I was so busy and swamped with work and home projects, that I couldn’t convince myself to drop it all long enough to go get a refill. I’ve been back on it for a couple of weeks now, and it’s not cutting through this time.

I would hope it’s allergies or stress or polonium poisoning or such, but it’s all too familiar. I already have the fresh wounds and hour-old scabs. I’m already down to about five hours of sleep a night again, interspersed with random wakenings, sometimes to scratch, sometimes just to stare at the wall and wonder why I’m awake this time. A couple of mornings, I’ve had the joy of once again having to clean the caked blood out from under my fingernails after I woke up. Joy.

I have a PET scan coming up next Friday (the 22nd if you’re still reading, and if you are, you’re my new best friend. I will quiz you before showing you the super-secret best friend’s handshake, though), and for the first time ever, I’m actually a little scared.

Aside from the ol’ scanxiety (which I never had before now, since I got so used to hearing bad results), there’s another thing I’m scared of and that’s my stupid subconscious. Aside from all of the typing it’s made me do tonight, there’s one other little thing it did. I was supposed to have my PET scan back in May. Somehow, I always managed to forget it until 6 or 7 at night. Or I’d be “too busy” to get away and make a phone call. Even with four or five voicemails from the onc’s office reminding me that I really do need to call and schedule that scan soon.

But I finally did it, so we’ll roll the dice again and see what happens.

And with that, I think I’ll post this and see how long I get to sleep tonight.

Weird as it may be, though I started the post with “After You’ve Gone,” (Benny Goodman’s version, if you’re interested) at the moment, my iTunes is playing the theme to The Great Escape. Odd, yet somehow strangely appropriate.